Calidad de vida en niños con artritis idiopática juvenil

Autores/as

DOI:

https://doi.org/10.22529/

Resumen

El pronóstico de los pacientes con Artritis Idiopática Juvenil (AIJ) ha mejorado considerablemente en las últimas décadas probablemente debido al diagnóstico temprano, al reconocimiento de las formas leves, los avances en el conocimiento de las posibilidades terapéuticas de la enfermedad y sus complicaciones. A pesar de esto la AIJ está aún asociada con importante morbilidad y discapacidad funcional a largo plazo. La evaluación clínica de los niños con AIJ requiere no solamente las medidas de la actividad de la enfermedad sino también el entendimiento de los efectos de la enfermedad y la terapia prescripta sobre el bienestar físico y psicosocial. OBJETIVOS: 1. Investigar la Calidad de Vida Relacionada con la Salud (CVRS) y sus determinantes en pacientes con AIJ. 2. Evaluar la CVRS en los diferentes subtipos de AIJ. 3. Compara la CVRS entre los pacientes con AIJ y niños sanos de edades similares y provenientes de la misma área geográfica.

Descargas

Referencias

Cassidy JT, Petty RE, Laxer RM, Lindsley C B. Textbook of Pediatric Rheumatology 2005, 5ta Edición. Elsevier Saunders Inc. U SA . 206-208. https://doi.org/10.1016/B978-1-4160-0246-8.50015-2

Cassidy JT, Nelson A M . The frequency of juvenile arthritis. J Rheumatol 1988; 15:535-536.

Cassidy JT. W hat's in a ñame? Nomenclature of juvenile arthritis. A North American view . J Rheumatol Suppl 1993; 40:4-8.

Petty RE. Frequency of uncommon diseases: is ju v en ile idiopathic arthritis underrecognized?. J Rheumatol 2002; 29:1356-1357.

Brewer EJ. Bass J, Baum J, et al. Current proposed revisión o f JRA criteria. Arthritis Rheum 1997; 20 (Suppl 2): 195-199.

Wood P. Special Meeting on: nomenclature and classification of arthritis in children. In: Munther E (Ed). The Care of Rheumatic Children. EULAR Publisher, Basle 1987; 47-50.

Southwood TR, Woo P. Childhood arthritis: the ñame game. Br J Rheumatol 1993; 32:421-423. https://doi.org/10.1093/rheumatology/32.5.421

Fink CW and the ILART ask foce for Classification Criteria. Proposal for the development of classification criteria for idiopathic arthritides o f childhood. J Rheumatol 1995; 22:1566-1569.

Petty RE, Southwood TR. Braun J, et al: Revisión o f the proposed classification criteria for juvenile idiopathic arthritis: Durban. J Rheumatol 1998; 2 5 :1991-1994.

Manners PJ and Bower Carol. Editorial Worldwide prevalence of Juvenile Arthritis- Why does it vary so much? J Rheumatol 2002; 29:1519-1520.

Oen KG, Cheang M. Epidemiology of chronic arthritis in childhood. Semin Arthritis Rheum 1996; 26:576-592. https://doi.org/10.1016/S0049-0172(96)80009-6

Oen K. Com parative epidem ioiogy o f the rheumatic diseases in children. Curr Opin Rheumatol 2000; 12:410-414. https://doi.org/10.1097/00002281-200009000-00010

Cassidy JT, Petty RE, Laxer RM , Lindsley C B . Textbook o f Pediatric R heum atology 20 0 5 , 5ta Edición. Elsevier Saunders Inc. USA . 209-211.

Anderson-Gare B. Juvenile Arthritis- Who gets it, where and when? A review o f current data on incidence and prevalence. Clin Exp Rheumatol 1999; 17:367-374.

Arguedas O A , Fasth A , Andersson-G are B. A prospective population based study on outcome of juvenile chronic arthritis in Costa Rica. J Rheumatol 2002; 29:174-183.

Anderson-Gare B. Juve ile Chronic Arthritis. A population based study on epidemiology, natural history and outcome. Department of Pediatrics, Güteborg University, Sweden, 1994; 1-149.

Manners PJ and B ow er Carol. Worldwide prevalence of Juvenile Arthritis- Why does it vary so much? J Rheumatol 2002; 2 9 :1521-1530.

Kiessling U , Doring E, Listing J, et al. Incidence and prevalence of juvenile chronic arthritis in East Berlin 1980-88, J Rheumatol 1998 ;25 :1837 -1843 .

Kaipiainen-Seppänen O, Savolainen A. Changes in the incidence o f JRA in Finland. Rheumatology 2001; 40:928-932. https://doi.org/10.1093/rheumatology/40.8.928

Moe N , Rygg M. Epidemiology of juvenile chronic arthritis in Northern Norway: A 10-year retrospective study. Clin Exp Rheumatol 1998; 16:99-101.

Arguedas O A , Fasth A , Andersson-G are B, et al: Juvenile chronic arthritis in urban San José, Costa Rica: a 2-year prospective study. J Rheumatol 1998; 25:1844-1850.

Peterson LS, Masón T. Juvenile rheumatoid arthritis in Rochester, M innesota 1960-1993. Is the epidemiology changing?. Arthritis and Rheum 1995; 39:1385-1390. https://doi.org/10.1002/art.1780390817

Sullivan D B , Cassidy JT, Petty RE. Pathogenic implications of age at onset in juvenile rheumatoid arthritis. Arthritis Rheum 1975; 18:251-255. https://doi.org/10.1002/art.1780180309

Denardo Bethany A , Tucker Lori B. D em ography of a regional pediatric rheumatology patient population. J Rheumatol 1994; 21:1553-1561.

Bowyer Susan. Pediatric rheumatology clinic populations in the US: Results of 3 years survey. J Rheumatol 1996; 23:1968-1974.

Malleson Peter N , Fung M Y and Rosenberg AM . The incidence of pediatric rheumatic diseases: results from the Canadian pediatric rheumatology association disease registry. J Rheumatol 1996; 23:1981-1987. Página 78

Graham T B , Glass D N . Juvenile rheumatoid arthritis: ethnic differences in diagnostic types. J Rheumatol 1997; 24:1677-1679.

Lindsley C B . Seasonal variation in system ic onset juvenile rheumatoid arthritis. Arthritis Rheum 1987; 30:838-839. https://doi.org/10.1002/art.1780300719

Uziel Y, Pomeranz A , Brik R, et al Seasonal variation in systemic onset juvenile rheumatoid arthritis in Israel. J Rheumatol 1999; 26(5): 1187-1189.

Feldman BM , Birdi N , Boone JE et al. Seasonal onset of systemic onset juvenile rheumatoid arthritis. J Pediatr 1996; 12 9 (4 ):5 13-518. https://doi.org/10.1016/S0022-3476(96)70115-4

Murray KJ, Grom A A , Thompson SD , et al. Contrasting cytokine profiles in the synovium of different forms of juvenile rheumatoid arthritis and juvenile spondyloarthropathy: prominence of interleukin 4 in restricted disease. J Rheumatol 1998; 25:1388-1398.

Miller M L, Cassidy TJ. Juvenile Rheumatoid Arthritis. Berhrman: Nelson Textbook of Pediatric. 2004; 17th ed. Elsevier Saunders Inc. U SA . 799-805.

Thomson W, Barrett JH, Donn R, et al. Juvenile idiopathic arthritis classified by the ILAR criteria: HLA associations in UK. patients. Rheumatology 2002; 41:1183-1189. https://doi.org/10.1093/rheumatology/41.10.1183

Moore T L . Immunopathogenesis of juvenile rheumatoid arthritis. Curr Opin Rheumatol 1999; 11(5):377-387. https://doi.org/10.1097/00002281-199909000-00009

De Benedetti F, Ravelli A , Martini A . Cytokines in juvenile rheumatoid arthritis. Curr Opin Rheumatol 1997; 9:428-433.

https://doi.org/10.1097/00002281-199709000-00009

Grom A A , Murria KJ, Luyrink L, Emery H y col. Patterns o f expression o f tumor necrosis factor a , and their receptare in synovia of patients with juvenile rheumatoid arthritis and juvenile spondyloarthropathy. Arthritis Rheum 1996; 39:1703-1710. https://doi.org/10.1002/art.1780391013

De Benedetti F, Massa M , Pignatti P, Albani S, Novick D , Martín A . Serum soluble interleukin 6 (IL6) receptor and IL -6/soluble IL-6 receptor complex in systemic juvenile rheumatoid arthritis. J Clin Invest 1994; 93:2114-2119. https://doi.org/10.1172/JCI117206

Yokota S, M iyam ae T, Im agaw a T, Iwata N , Katakura S, Morí M , Woo P et al. Therapeutic Efficacy of Humanized Recombinant Anti-Interleukin-6 Receptor Antibody in Children with Systemic-Onset Juvenile (idiopathic Arthritis. Arthritis and Rheum 2005; 52:3:818-825. https://doi.org/10.1002/art.20944

Ruperto N , Ravelli A , Pistorio A , Martini A , for the Paediatric Rheumatology International Triáis Organisation (PRINTO). Cross- cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (C H A Q ) and the Child Health Questionnaire (CH Q ) in 32 countries. Review of the general methodology. Clin Exp Rheumatol 2001; 19 (Suppl. 23): S1-S9.

Stand CV, Russell A S. WHO/1LAR task force on quality of life. J Rheumatol 1997; 24:1630-1633.

Burgos- Vargas R. Assessment of quality of life in children with rheumatic disease. The Journal of Rheumatol 1999; 26:7-10.

Landgraf JM, A betz L, Ware JE Jr. The Child Health Questionnaire: a user manual. Boston: The Health Institute, New England Medical Center; 1966.

Singh Q Athreya BH , Fries JF, Goldsmith DP. Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis Rheum 1994; 37(12):1761-1769. https://doi.org/10.1002/art.1780371209

Miller M L, Kres A M , Berry CA . Decreased physical function in JRA. Arthritis Care and Research 1999; 12 (5 ):3 0 9 -3 13. https://doi.org/10.1002/1529-0131(199910)12:5<309::AID-ART1>3.0.CO;2-K

Moroldo M B, Ruperto N , Espada G, Russo R, Liberatore D , Cuttica R, Giacomone D; Paediatric Rheumatology International Triáis Organisation. The Argentinean versión of the Childhood Health Assessment Questionnaire (C H A Q ) and the Child Health Questionnaire (C H Q ). Clin Exp Rheumatol 2001; 19(23): S 10-S 14.

Tucker LB. Whose life is it anyway? Understanding quality o f life in Children with Rheumatic Diseases. J Rheum atol 2000; 27:8-11. 47. M iller M L, L eB ovid ge J, Feldm an B. Health-related quality of life in children with arthritis. Rheum Dis Clin North Ara 2002; 28:493-501. https://doi.org/10.1016/S0889-857X(02)00019-4

Duñy CM . Measurement o f Health Status, Functional status, and quality of life in children with juvenile idiopathic arthritis: Clinical Science for the Pediatrician. Pediatr Clin North Am 2005; 52(2):359-372. https://doi.org/10.1016/j.pcl.2005.01.009

Steinbrocker O, Traeger CH, Batman RC. Therapeutic criteria in rheumatoid arthritis. JAMA 1949; 140: 659-662.

https://doi.org/10.1001/jama.1949.02900430001001

Oliveira S, Ravelli A , Castell E, Malattia C, Pouchot J, Prieur A M , et al. Health related quality of life of patients with juvenile idiopathic arthritis: a multicenter multinational cohort study conducted by the Pediatric Rheumatology International Triáis Organization. Arthritis Rheum (Arthritis Care and Research) 2007; 57:35-43. https://doi.org/10.1002/art.22473

Vidal S. Aspectos éticos de la investigación en seres humanos en Sabulsky J. Investigación C ientífica en salud-enfermedad. Editorial Cosmos 1996; 243-272.

Kunamo I, Kalio P, Pelkonen P. Incidente o f artritis in urban Finnish children. A prospective study. Arthritis and Rheum 1986; 29:1232-1238. https://doi.org/10.1002/art.1780291008

Towner SR, Michet CJ, O 'Fallon W Jr, Nelson A M . The epidemiology of juvenile arthritis in Rochester, Minnesota 1960-1979. Arthritis and Rheum 1983; 26:1208-1213. https://doi.org/10.1002/art.1780261006

Anderson-G are B. Fasth A . Epidemiology o f juvenile chronic arthritis in southwestern Sweden: a 5-year prospective population study. Pediatric 1992; 90:950-958. https://doi.org/10.1542/peds.90.6.950

Aggarwal A , Agrw al V, Danda D et al Outcome in juvenile rheumatoid arthritis in India, Indian Pediatric 2004; 41:180-184.

Cuesta AI; Kerr K; Simpson P; Jarvis JN. Subspecialty referrals for pauciarticular juvenile rheum atoid arthritis. Arch Pediatr Adolesc Med 2000; 154:122-125. https://doi.org/10.1001/archpedi.154.2.122

Anderson-G are B and Fasth A . The natural history of juvenile chronic arthritis: A population based cohort study. I. Onset and Diseases Process. J Rheumatol; 1995; 22:295-307.

Guillaume S, Prieur AM et al. Long-term outcom e and prognosis in oligoarticular-onset JIA. Arthritis and Rheum 2000; 43:1858-1865. https://doi.org/10.1002/1529-0131(200008)43:8<1858::AID-ANR23>3.0.CO;2-A

Al-Matar JM, Petty RE, Tucker LB, Malleson PN, Schroeder ML, Cabral D A. The early pattem of joint involvement predicts disease progression in children with oligoarticular (Pauciarticular) Juvenile Rheumatoid Arthritis. Arthritis and Rheumatism 2002; 46(10); 2708-2715. https://doi.org/10.1002/art.10544

Schneider R, Laxer RM . Systemic onset juvenile rheumatoid arthritis. Baillieres Clin Rheumatol 1998; 12:245-271. https://doi.org/10.1016/S0950-3579(98)80018-6

Lomater C, Gerloni V, Gattinara M, Mazzotti J, C im az R, Fantini F. Systemic onset juvenile idiopathic arthritis: a retrospective study of 80 consecutive patients followed for 10 years. J Rheumatol 2000; 27:491-496.

Schneider R, Lang B A , Reilly BJ; et al.: Prognostic indicators of joint destruction in systemic-onset juvenile rheumatoid arthritis. J Pediatr 1992; 120: 200-5. https://doi.org/10.1016/S0022-3476(05)80427-5

Modesto C, W oo P, García-Consuegra J, et al.: Systemic onset juvenile chronic arthritis, polyarticular pattem and hip involvement as markers for a bad prognosis. Clin Exp Rheumatol 2001; 19:211-217.

Bettering WP, ten Cate R, van Suijlekom , et al.: The relation between impairments in joint function and disabilities in independent function in children with systemic juvenile idiopathic arthritis. J Rheum 2001, 28:1099-1105.

Ansell BM . Joint manifestations in Children with juvenile chronic polyarthritis. Arthritis and Rheum 1977; 20:204-206.

Ruperto N , Ravelli A , Falcini F, Lepore L, Buoncompagni A , Gerloni V, et al, and the Italian Pediatric Rheumatology Study Group. Responsiveness o f outcome measures in juvenile chronic arthritis. Rheumatology (Oxford) 1999; 38:176-180. https://doi.org/10.1093/rheumatology/38.2.176

Moretti C, Viola S, Pistorio A, Magni Manzoni S, Ruperto N , Martini A , et al. Relative responsiveness of condition specific and generic health status measures in juvenile idiopathic arthritis. Ann Rheum Dis 2005; 64:257-261). https://doi.org/10.1136/ard.2003.016519

Ruperto N , Buratti S, Duarte-Salazar C, Pistorio A , R eiff A , B em stein B, et al. Health-related quality o f life in juvenile onset system ic lupus erythem atosus and its relationship to disease activity and dam age. Arthritis Rheum 2004; 51:458-464. https://doi.org/10.1002/art.20412

Dahlquist LM. Commentary: Are Children w ith JRA and Their Families at Risk or resilient?. Journal of Pediatric Psychology, 2003; 28:45-46. https://doi.org/10.1093/jpepsy/28.1.45

Peterson et al, Psychosocial outcomes and health status of adults who have had juvenile rheumatoid arthritis: a controlled, population-based study. Arthritis Rheum 1997; 40(12):2235-2240. https://doi.org/10.1002/art.1780401219

Vandvik IH. Mental health and psychosocial functioning in children with recent onset of rheumatic disease. J Child Psychol Psychiatry 1990; 31:961-971. https://doi.org/10.1111/j.1469-7610.1990.tb00837.x

Aasland A , Flato B, Vandvik IH. Psychosocial outcome in juvenile chronic arthritis: a nine year follow -up. Clin Exp Rheumatol 1997; 15:561-568.

David J, Cooper C, Hickey L, et al. The functional and psychological outcomes of juvenile chronic arthritis in young adulthood. Br J Rheumatol 1994; 33:876-881. https://doi.org/10.1093/rheumatology/33.9.876

Naess S. Quality o f life research, Concepts, Methods and Applications. Institute o f Applied Social Research, 1987; O slo.

Sallfors C, Hallberg LR et al. Coping with chronic pain. Scand J D is R es 2001; 3:3-20. https://doi.org/10.1080/15017410109510765

Wallace C A , Levinson JE. Juvenile rheumatoid arthritis: outcome and treatment for the 1990s. Rheum Dis Clin North Am 1991; 17:891-905. https://doi.org/10.1016/S0889-857X(21)00134-4

Andersson G'árc B, Fasth A . The natural history o f juvenile chronic arthritis: a population based cohort study. II. Outcome. J Rheumatol 1995; 22:308-219.

Minden K, Kiessling U, Listing J, et al. Prognosis o f patients with juvenile chronic arthritis and juvenile spondyloarthropathy. J Rheumatol 2000; 27:2256-2263.

Sallfors C, Hallberg LR et al. Oscillating between hope and despair. Child Care, Health and Development 2002; 28:495-505. https://doi.org/10.1046/j.1365-2214.2002.00300.x

Ravelli A. Toward an understanding o f the long-term outcome of juvenile idiopathic arthritis. Clin Exp Rheumatol 2004; May-Jun 22(3):271-275.

Huygen A C J, Kuis W, Sinnema. Psychological, behavioral, and social adjustment in children and adolescents with juvenile chronic arthritis. Annals Rheumatic Diseases 2000; 59:276-82. https://doi.org/10.1136/ard.59.4.276

N oli RB, Kozlowski K. Social, emotional, and behavioral functioning of children with juvenile rheumatoid arthritis. Arthritis Rheum 2000; 46:1387-1389. https://doi.org/10.1002/1529-0131(200006)43:6<1387::AID-ANR24>3.0.CO;2-C

Matthews D A , Oración y Espiritualidad. Rheumatic Diseases Clinics of North America (Edición española) 2000; 2:181-191.

Iglesias MJ, Cuttica RJ, et al. Design and validation of a new scale to assess the functional ability in children with juvenile idiopathic arthritis (JIA). Clin Exp Rheumatol 2006; 24:713-718.

Descargas

Publicado

2017-05-22

Número

Sección

Tesis Doctorales

Cómo citar

Apaz, M. T. (2017). Calidad de vida en niños con artritis idiopática juvenil. Revista Methodo: Investigación Aplicada a Las Ciencias Biológicas, 2(1). https://doi.org/10.22529/

Artículos más leídos del mismo autor/a